Saturday, April 7, 2012

Good News Today

Dear Ones,

As you probably remember, Laura and I were back at CTCA this week for follow-up and a PET/CT, which is frankly just looking for spread of the cancer. They call it a "new baseline."

We got the results yesterday, And the test came back clear, "no evidence of disease." Blessed be!

So time for us to take a deep breath, feel a lot of relief, and gently step back into life, the new one that isn't quite like our old one.


My system was quite challenged by the radiation, and my immune system is still very diminished -so it may be slow, and with very limited crowds and hugging for awhile still.

Short term, I am focusing on getting our "new" home ready to move into, painting is good P/T and is helping me get my strength back. Then I will focus on getting back to work, etc. As I hope you remember, I hung up my super-woman cape at the outset so am really looking to be gentle and patient with myself in this new process.

Thank you all for your prayers, assistance, and love this year; Laura, Sarah, and I have felt and appreciated them greatly,

Many blessings and Happy Easter,

~Amelia and Laura

Wednesday, April 4, 2012

You look so good!





Dear Ones.

"You look so good!"

Yes, I do. That is a good thing.

At times it feels like people are somewhat surprised. They expect me to appear sicker somehow. I've even felt an occasional judgment float through-perhaps I'm not suffering enough, if I am doing the metastatic breast cancer path I ought to look and feel much worse.

And I find I need to respond to that and share my answers to such questions.

First, I started this process really healthy. Vibrantly healthy and full of strength. And then I started listening to what I needed to get through this journey.

So, I am on sabbatical, I stepped out of my life radically to take the time to honor, care for and heal my body.

Good medical - listened to me, modified medications, spread out the schedule and added extra supports like fluids and vitamins the day after infusions.

Listened to my body.

Stepped out of relationships where I felt I as not being heard.

Holistic supports, nutritional supplements, food choices, homeopathy, acupuncture and massage.

Mind body medicine and support with a counselor at CTCA, as well as my long established therapeutic relationships. I have worked with four therapists throughout this process on different aspects of the experience

Shamanic healing work with a trusted and amazing shaman.

Prayer, my own and that of do many others.

I have gotten to learn to receive and allow all the love and prayer in.

And I have had very wonderful support and help day to day. My family and dear friends have kept in touch and helped as they can. Even Sarah at eleven has stepped up and become more conscious and independent.

My biggest support has been Laura. She has been beside me at all times in this process (unless it is surgical suite or radiation exposure.). She has cared for me and held me and loved me no matter how badly I felt. She put her schooling on hold and stepped up her time at our business, covering many of my clients and keeping it all going. She loves me bald, she loves me cranky from chemo and steroids, she loves me with surgical drains and long drives and when we are both exhausted from the process.

I simply cannot imagine doing this without Laura my love.

Yes, I do look healthy, my scars, burns and damaged cells are covered by my clothes and skin.

Yes, I am walking the traditional medical path for treating metastatic breast cancer. Medicine does know how to treat it with some very good outcomes, and the treatment has improved over the years. The description cut, poison and burn is still how it is done and it is brutal at times.

I am so grateful to have the access and the freedom to walk this path my way. With all the different supports that have made the process bearable and successful.

I have finished radiation and am healing. We return just before Easter for another PET/CT to confirm all is well. Slowly and surely I am and will continue to return to life. Not life as I knew it. That is gone. A new aspect of my adventure in life.

Before this started, a friend told me that I ought to expect to hear about how good I look for a long time. Perhaps it is simply learning to take in a compliment better, on that I will continue my work. Perhaps it is our consciousness about cancer, and the surprise when someone doesn't appear to be dying. Perhaps it is incongruous, that I look happy and healthy while reporting the challenges of this process. I really prefer to be congruous in all things and n this I am so grateful that I don't appear as miserable as I feel at times!

Blessed be.
Amelia

Slowly rising

Dear Ones,

Below is a quick note Laura wrote last night to a friend with a bit of an update. I asked if I could share it to let you all know what is going on these days as I have been so deep in the underworld of this healing journey.
 
from Laura:
We head to CTCA tomorrow for the follow-up bloodwork and PET/CT scan on Thursday, results on Friday. The scan will establish a new baseline and is also the standard test to examine for any distant metastases. We have every reason to believe that all the cancer was removed with the surgeries and that the chemo and radiation regimens have been über insurance. That said, there is still the build-up and realism of all the possible scenarios this journey can bring.

So we wanted to send a heads up and ask for extra support, love, and gentle consciousness as we journey through this week.

Will of course post an update when we know more.

Hope spring is awesome for each of you this year!!

Much love,
Amelia and Laura

Friday, March 9, 2012

Long time

June, July, August
Sept., Oct., Nov., Dec., Jan., Feb., March
Long journey indeed.


Now, I may simply
recover, and breathe a bit
Celebrate? Not yet.


Post traumatic growth?
Another bar set so high,
Repair cells and soul.


Love,
Amelia

Tuesday, March 6, 2012

Not many words for it all

Dear Ones, much to say
Radioactivity
Taken attention.


Radiation - my
tired, burned finale
Back when recover'd


Back off, don't touch
Yes, beautiful scarf is green
Respect boundary


Slash, poison and burn
Our modern cancer treatment
Add ancient wisdom


Cancer survivor?
Or a treatment survivor?
Either way, I'm here, life good.


So deeply tired
Energy needed to heal
Awake exhausted


Please, a gown that fits?
Really? I have to ask you?
First in thirty months?


Fresh aloe and tea
Not ointments or cortisone
No skin breakdown, hmmmm


Are we crazy? yes
Feet feel better out of shoes
Went to flower show


Much love to you all
Treatment, tough and tiring
Gratitude, miss you.

~Amelia



Tuesday, January 24, 2012

Treatment Fatigue

Dear Ones,

It has been too long, I apologize.

Living our day to day life, celebrating Christmas, making decisions about the house renovation, that's about all I have been up to, and it is about all I could have been up to:-)

I am finished with chemo, with three weeks of recovery since my last infusion. Radiation starts with a simulation next Wednesday and for real the following Monday, it is slated to last five weeks, five days a week.

I'm hunkered down inside somewhat these days. It is winter after all - a dark, fallow, resting, quiet time.

Reaching out has gotten more challenging. I so love to connect with people and it is simply exhausting too. This journey is in its eighth month, and I'm calling what I am feeling, treatment fatigue. It's been a long time of living in our alternate universe and I am becoming tired on another level beyond the physical and emotional.

I'm not complaining, simply expressing and explaining. I am also processing, and figuring out where I am in all of this, as I continue to be gentle and allow. Allow that take-out is ok some days, allow that I am still loved and remembered, even when I feel isolated, allow that a nap really is ok, allow the frustration, allow the sadness, allow the fears.

I can even allow that mild agoraphobia is ok, and that I'm rebuilding and it might be a time when being deeper inside, and even a bit isolated could be ok.

There are voices in my head that are debating that. I'll be gentle to my voices too.

I am so grateful for the freedom to have this experience. There are voices in my head who think I would be transformed and become a new improved version of myself, if only I was doing this better.

Well, I'm doing this as well as I can, moment to moment, and I don't know if that is going to happen, as far as I can tell, I'm still Amelia. This isn't the end of the story, I haven't even completed this chapter.

I can say, I am getting better and better at simply being Amelia, and having that be ok.

Blessings to you all,


Amelia

- There are huge flocks of wintering ducks and swans playing on the South River by our house, I would so love to find the metaphor, connection, a story to tell. My brain is fuzzy though, so I will simply enjoy all the beautiful birds.

Today we had mallards and wood ducks and buffleheads, tundra swans and a mass of mergansers have arrived. Watching the diving ducks and tipping swans is simply a delight.


Wednesday, December 21, 2011

Christmas Update from Longwood Gardens



Dear Ones,

Longwood Gardens has become our go-to place on our way home from CTCA.  We are there on a Thursday, and I am generally full of steroids and random energy that responds well to a good walk.  Longwood makes that walk very pretty and very special.

The quick update, it is a week out from my seventh infusion.  I am well, and feeling so many of the random side effects, muscle aches, neuropathy, random low-grade cold symptoms, GI pain.  All and all though, nothing too concerning, and my energy is good.  Probably too good, I continue to be challenged to rest enough!
I have one more infusion of Taxol, that will be the week after New Year's.  Wow- how quickly it has all gone, a blessing in itself.  Then on to radiation, we are expecting Tomotherapy, which allows a shorter series of treatments and is safer for surrounding organs, and that is expected to start in early February.  My sister Polly will be here to take care of Sarah, as we will need to be at CTCA four nights a week.

We are preparing to have a lovely Christmas. It has turned out to be wonderfully full, so this year we will celebrate Christmas Eve Eve, as well as our traditional Christmas Eve with dear friends.  That night as Laura and I go to the midnight service at St. Margaret's, Sarah will be off to Dad's for their Christmas.  Then, we will fly to Colorado to join all of Laura's family in Creede and begin the celebrations anew! From what was looking like a small, uneventful Christmas, since we are in a rental and have none of our stuff, it has become a delightful event.  For me, the rule simply has to be rest, rest, rest, so that I can enjoy it all.  Have I mentioned the herd? Yes, horses in Colorado, so Sarah is very excited!

Here is a picture tour of Longwood from our last two visits.  It is a magical place and we are so grateful to have it to visit!

Photos start with our visit last week. It had been such a full day that we didn't arrive until late afternoon, so we got to enjoy the magical lights.


















Daylight visit on Thanksgiving Day:








Much love, thanks for sharing this moment of beauty, as well as our journey,

~Amelia